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“Hi to a wonderful team who supports us. Your constant encouragement is so appreciated. You understand my struggles and know what to say. I just thought to let you know that you make a difference in my life.”

– Thank you

Coping with the Diagnosis

Most children and adults with the 22q11.2 deletion do quite well both medically and as members of their families and communities at large. As with anything that is unexpected, coming to terms with the diagnosis is often difficult at first but becomes easier as more information becomes available. Families can benefit from the opportunity to meet other children and adults with the 22q11.2 deletion and/or to converse with them through diagnosis-specific internet sites. In addition, attendance at family meetings and picnics; contacting support networks; and sending children to camps specifically designed for those individuals with a 22q11.2 deletion is often helpful, as families realize they are not alone.

Donate Today

At the International 22q11.2 Foundation we help families that need important resources and information to meet the needs of loved ones with 22q.