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Assistance Programs

The Achieving a Better Life Experience (ABLE) Act

New Website To Serve As ABLE Account Clearinghouse in USA

As states prepare to offer accounts that will allow people with disabilities to save without losing government benefits, a new website is launching to help families navigate the offering. The resource center website includes information about the law, ABLE accounts, who qualifies and particulars of each state’s legislation.

The Achieving a Better Life Experience (ABLE) Act, a federal law signed in December of 2014, will give many individuals with disabilities and their families the opportunity to save for the future and fund essential expenses like medical and dental care, education, community- based supports, employment training, assistive technology, housing and transportation. The law allows eligible individuals with disabilities the ability to create “ABLE accounts” which resemble the qualified tuition programs, often called “529 accounts,” that have been established under that section of the tax code since 1996. By saving for and funding critical daily expenses, these ABLE accounts will give US citizens with disabilities increased choice, independence, and opportunities to participate more fully within their communities.

To Learn more here: www.ablenrc.org.

Life Planning and Legal Support

Legal Support

Whether you are in the early school years, adolescence, or transitioning to adulthood, an individual with 22q may require legal services regarding issues related to education advocacy, guardianship, and special needs trusts. The following content is intended to be a helpful toolkit for parents and caregivers.

Becoming an Adult: Legal and Financial Planning

There are many changes that occur as a child with a disability or with special health care needs becomes a legal adult and families need to know their options. This video addresses Health Care Power of Attorney, Health surrogacy laws and legal guardianship. Additionally, information about estate and long-term planning is explained, so young adults with special health care needs and their families can make sure they know how to access the benefits they are eligible for in adulthood. Special needs trusts and letters of intent are discussed.

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At the International 22q11.2 Foundation we help families that need important resources and information to meet the needs of loved ones with 22q.