Dayna Is a young lady who was diagnosed 22q deletion as a baby. Her first open-heart surgery was soon after being born and she has now had 6 open-heart surgeries and a pacemaker.
Elisabeth Posted November 1, 2021 Hello, my name is [...]
A few years ago I had written a paper on my life with 22q. Since I wrote it, life has been challenging but manageable. The following is an update on what’s been happening.
Posted August 12, 2021 Christy was born and raised [...]
Hello, My name is Cynthia! I’m 24 years old [...]
Ryan Lanford had big plans – always. Diagnosed with 22q in 1994, he wanted to be a running back for the Carolina Panthers.
Meet Brianna, a 32-year-old with 22q Deletion. Brianna’s story starts out like so many others, when she was born, there was no diagnosis.
Cara, a 28-year-old, Texas native, who lives with 22q11.2 deletion syndrome and manages her daily life with hard work, dedication, and a lot of faith
William is our April 22q Calendar Spotlight. Shortly after his birth, his parents noticed something wasn’t right.
Robin has been a feature story for us in the past, this time we want to share how she is working the front lines helping to educate others about the COVID19 vaccine.