Bella Rose was born July of 2018 in Indianapolis, IN. She was diagnosed prenatally with Tetralogy of Fallot so she was immediately taken after birth to Riley Children’s Hospital a few miles away from the hospital she was born in.
Olivia, “Livvy Lou”, is 20 months old, being on the mild side of 22q she is progressing well and at this point has only minor motor and speech delays.
Dylan is a 2 1/2-year-old curious, silly, and loving boy. He loves the outdoors, cars, superheroes and keeping up with his big brother Liam.
Teresa Elena Mataya was born on June 22, 2017, in Nashville, Tennessee, at Monroe Carrell Jr. Children’s Hospital (Vanderbilt).
Karsen Grey is now 5 years old and was born in Columbus, Ohio. We first noticed some developmental delays with him around a year old and at that time, we connected with our county’s program for such delays and began our journey with specialists.
Viola is 4 years old and was born at Loma Linda Children's Hospital in St, Loma Linda, CA. Viola was diagnosed with 22q Deletion at birth and in her 4 short years, she has been through many surgeries.
My name is Chelsea Gaughran, I was born in Richmond, Virginia, but lived in New Jersey until I was 2 years old and then I lived near Washington DC until I was 6 years old.
Noah is 7 years old and was born in Arkansas. He has always been such a sweet, kind and funny little boy. He was first diagnosed with 22q Deletion Syndrome
Lucas Moore’s health care team at University of Iowa Stead Family Children’s Hospital provided his parents with the missing piece of a puzzle when they diagnosed him with a rare syndrome called 22q, two days after birth.
Dayna Is a young lady who was diagnosed 22q deletion as a baby. Her first open-heart surgery was soon after being born and she has now had 6 open-heart surgeries and a pacemaker.