Karsen Grey is now 5 years old and was born in Columbus, Ohio. We first noticed some developmental delays with him around a year old and at that time, we connected with our county’s program for such delays and began our journey with specialists.
Viola is 4 years old and was born at Loma Linda Children's Hospital in St, Loma Linda, CA. Viola was diagnosed with 22q Deletion at birth and in her 4 short years, she has been through many surgeries.
My name is Chelsea Gaughran, I was born in Richmond, Virginia, but lived in New Jersey until I was 2 years old and then I lived near Washington DC until I was 6 years old.
Noah is 7 years old and was born in Arkansas. He has always been such a sweet, kind and funny little boy. He was first diagnosed with 22q Deletion Syndrome
Lucas Moore’s health care team at University of Iowa Stead Family Children’s Hospital provided his parents with the missing piece of a puzzle when they diagnosed him with a rare syndrome called 22q, two days after birth.
Dayna Is a young lady who was diagnosed 22q deletion as a baby. Her first open-heart surgery was soon after being born and she has now had 6 open-heart surgeries and a pacemaker.
Elisabeth Posted November 1, 2021 Hello, my name is [...]
A few years ago I had written a paper on my life with 22q. Since I wrote it, life has been challenging but manageable. The following is an update on what’s been happening.
George is a sweet little 2-year-old who tries hard to keep up with his 2 older brothers. This is how his mom tells his story:
Rhiannon
