JOIN US in spreading the word about 22q11.2 Differences during November’s 22q Awareness Month — the largest campaign of the year to raise awareness and funds for the International 22q11.2 Foundation!

“What’s 22q?” … Our goal during this month is to let the world know what a complex condition this is, how much support is sometimes required, and how these amazing, beautiful children and adults overcome many obstacles to survive and thrive! Not forgetting the few that are lost far, far too soon. We want the world to know all our stories and to recognize the beauty within these individuals.

You are important and we need you to get the word out about 22q11.2 Differences. There are many ways you can get involved to make a difference and Shine a Light on 22q!

As fall approaches and we look ahead to 22q Awareness Month, the International 22q11.2 Foundation is proud to share that we are ramping up our efforts to raise awareness around the critical need for increasing awareness and early detection of chromosome 22q11.2 differences. To that end, here’s what you can expect:

• Share your story – we would love to post your story and photo on our inspirational page and share with our social media community.
• “Shine a Light on 22q! Campaign” – Join us in raising awareness this NOVEMBER! Send a photo info@22q.org of yourself or your child for our “Shine a Light on 22q Campaign,” I Love Someone with 22q11.2 Deletion/Duplication” personalized ad. Once we receive your photo, we will create your image to share with family and friends throughout the month. We can’t wait to see all the wonderful 22qties spreading awareness throughout November! Please note, by sharing your photo you grant the Foundation permission to use it!

• Shareable Content – make sure to follow us, like us, and share our daily postings on your social media outlets. We will be posting daily facts, inspirational quotes and important links to medical guidelines and research. Please help us and do you part with our  shareable graphics, videos, and social media content that can posted on your personal social channels which we sincerely hope you will share with your families, friends, and healthcare providers.
  • • Facebook – @22qfoundation
    • Instagram – @22qfoundation
    • Twitter – @22qfoundation
• Request – 10 free, wallet-sized, 22q “Info Cards” that unfold into eight highly informative panels. These cards are ideal for sharing with others and will serve as a quick reference about 22q for family, friends, and professionals. Please fill out the following information here to receive your free info card.
• Flyer – Distribute our Awareness flyer here, designed for families, schools, and workplaces, to help spread the word while educating others about the differences associated with 22q11.2.

Thank you, as always, for your unwavering support. Together, we can continue to make a positive impact by increasing awareness and detection for chromosome 22q11.2 differences.

Other ways YOU can help us raise awareness:

Light up the Night for 22q11.2!

Tips for individuals who wish to send the letter by email to their local government or organization:

1. Save the Lighting Letter 2025 pdf file onto your drive or cloud;
2. Use Adobe Acrobat Reader (not your browser) to open the saved file;
3. Type in the name of the building and the city/town;
4. Save the file again;
5. Attach the file onto the email message that you send to the government or organization.

Tips for individuals who wish to send the letter by post to their local government or organization:

1. Print the Lighting Letter 2025 file
2. Write in the name of the building and the city/town;
3. Mail the letter to the government or organization.

The History of 22q Awareness Month

22q Awareness Month began in 2014, when proud Mom, Raj Hemus, created a Facebook Page, called 22qAwarenessDays, that has now grown to over 10,000 followers! Raj asked if the International 22q11.2 Foundation would share her site on our website and social media outlets – and of course, we agreed – as we all have the same drive to help further the mission to raise awareness, and help people learn about 22q11.2 deletion and duplication — the most common genetic syndrome no one has ever heard of!