For Children
Just Jen: Living With Invisible Differences
By R. S. Hibbard
In this funny, heartwarming celebration of kindness and inclusion, spunky grade school narrator Jenna, or Jen (as she prefers), shares all about living with invisible differences.
For Teens
SAT Strategies for Students with Learning Disabilities
This book was written primarily for parents and teachers of high school students who have learning difficulties that stem from a variety of different causes. Just a few among those possible difficulties are attention-deficit disorder, difficulties in perception, motor control problems, and even severe anxiety attacks related to test-taking situations. The author presents a strategic study program and test-taking plan specifically designed to help such students prepare for the SAT college entrance test.
College Success for Students with Learning Disabilities
The complete handbook for college-bound kids with learning disabilities.
Planning for college can be one of the biggest moments in a teen’s life, but for those students with learning and other disabilities, the college experience can be fraught with frustration, uncertainty, and lowered self-confidence. College Success for Students with Learning Disabilities offers teens the confidence, strategies, and guidance they need to effectively choose a college, get prepared for university life, and make the most of their collegiate experience.
The book covers pertinent topics such as understanding the rights and responsibilities of students with special needs, talking to professors and peers, getting involved, asking for and receiving accommodations, and utilizing one’s strengths to meet and exceed academic standards. This unique reference book also includes advice from current college students with disabilities to empower future students and provide them with hope for success.
The K&W Guide to Colleges for Students with Learning Differences
ABOUT THE K&W GUIDE TO COLLEGES FOR STUDENTS WITH LEARNING DIFFERENCES, 12TH EDITION
Find the Right School for Your Specific Needs.
Hundreds of thousands of students with learning disabilities head to college every year. This comprehensive guide makes it easy for those students and their families to tackle the daunting process of finding the school that fits their needs best.
This indispensable resource book for students, parents, and professionals includes:
- More than 350 school profiles with targeted information on services, admissions, and polices
- Admissions requirements and graduation policies for learning disability programs
- Services available to learning-disabled students at each college: tutors, note-takers, oral exams, extended test time, and more
- Policies and procedures regarding course waivers or substitutions
- Names, phone numbers, and email addresses of programs administrators at each school
- Strategies to help students find the best match for their needs
- Advice from learning disabilities specialists
The 11th edition of the K&W Guide also includes a Quick Contact Reference List with essential program information for another 1,000 schools, as well as an addendum with other transition options for students who may not be college-bound, but who want to continue to pursue independent living skills and education beyond high school.
For Parents
Helping your Anxious Child
A Step by Step Guide for Parents
by Ronald Rapee, PhD
This revised and expanded edition of the best-selling Helping Your Anxious Child offers parents the most up-to-date, proven-effective techniques for helping children overcome anxiety.
Overview of The Syndrome Missing Genetic Pieces
by Sherry Baker-Gomez
The author, Sherry Baker-Gomez, is the parent of a child with VCFS. Her son, now 25, was finally diagnosed with VCFS at 18 years of age after a long medical history and searching for answers. Sherry, herself, had been so desperate for answers after many years of struggling with her son’s undiagnosed disorder that she became a nurse in an effort to understand the symptoms she saw in him and what they meant. Then she realized that many other parents needed answers and needed to know where to turn, so she began writing.
Committed to VCFS education, Sherry started gathering information on resources and, stories that offered support. Working along with other parents and professionals, Sherry has organized this collection of information into a comprehensive handbook that brings information and resources to parents, professionals, and others under one cover.
Modified from http://www.amazon.com/Missing-Genetic-Pieces-Sherry-Baker-Gomez/dp/097453580X
Educating Children with Velo-cardio-facial Syndrome
by Donna Cutler-Landsman
This book effectively blends the thoughtful research that has transpired within the past 15 years with practical and current educational strategies to better meet the needs of children with VCFS and other developmental disabilities.
The first part of the book explains the syndrome and the implications of current research in the fields of brain abnormalities, language/learning profiles and psychiatric/behavioral difficulties. These chapters are written in a reader-friendly manner for parents, professionals, and teachers. The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. It includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures, as well as behavioral problems in the school setting. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child’s everyday life.
Modified from http://www.amazon.com/Educating-Velo-Cardio-Facial-Syndromes-Communication-Disorders/dp/1597564923
Educating the Child with VCFS Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome. Second Edition
by Donna Cutler-Landsman
For the second edition, the author has added fresh and updated content. A partial list of new material includes:
- The most recent research and studies to make the text as up-to-date as possible
- Expanded and enhanced coverage of bullying and the social/emotional aspects of VCFS
- More information on common core standards and standardized testing for children with disabilities
- Homeschooling and other placement alternatives
- Executive functioning deficits and their impact in the classroom
- Dealing with problem behaviors
- Issues related to anxiety and school success
- Cognitive remediation and new treatment strategies
- New math and reading remediation techniques
- Expanded section on the very young child
With its expanded content, as well as contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial-syndrome.
Modified from http://www.amazon.com
Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome)
by Raymond Tanner
54-year-old Raymond Tanner has always felt different. As a child, he looked unusual, had trouble speaking clearly and was a slow learner. Over the years, he’s had countless operations to improve his appearance. For Tanner, being diagnosed with VCSF (at the age of 43) helped him re-evaluate his life, but it also brought a burden of guilt – both his sons were born with the syndrome. His first son died of heart problems when he was nine days old. His other son, Andrew, has ongoing health issues. Tanner now hopes to help other families through giving them a better understanding of VCFS, and encouragement that support is available and there is hope for the future.
This book is a compilation of stories from families from Australia, France, Israel, New Zealand, South Africa, the UK and the USA; and other important information. It also tells about Raymond Tanner’s life story with VCFS in himself and his two sons.
Modified from http://www.amazon.com/Footprints-Hope-VCFS-Velo-Cardio-Facial-Syndrome/dp/0958117535
Adolescence and Young Adulthood Being Different: Growing up with impairments
by Daniella Krijger
Daniella is worried about the future of her son Tijn. He has been diagnosed with 22Q11deletion syndrome, and also has ADHD, autism spectrum disorder and Dyslexia. She wanted to know how people with a syndrome, disorder or impairment led their lives, what they had been through and whether they had been able to make their dreams come true despite these obstacles. How does it feel when others see you as being ‘different’ and treat you ‘differently’?
In this inspiring book, adolescents and adults with 22Q11 deletion syndrome, ADHD and ASD tell about their dreams and ambitions, friendships, love, education, work, drugs and depressions. Young people with a disability have to work harder at doing their best. They have the additional challenge of biases and incomprehension. Increasing awareness about 22Q11 deletion syndrome will hopefully contribute to more understanding and patience for these people who might seem different but who are as ordinary as anyone else.
Modified from http://www.amazon.com/Being-Different-Growing-impairments-ebook/dp/B008EVT0TE
A Different Life
by Quinn Bradlee
Ten percent of the population is affected by a learning disability, but few of us understand what being learning disabled (LD) is really like. When he was fourteen, Bradlee was diagnosed with Velo-Cardio-Facial-Syndrome (VCFS), a wide-spread, little-understood disorder that is expressed through a wide range of physical ailments and learning disabilities. In this funny, moving, and often irreverent book, Bradlee tells his own inspirational story of growing up as an LD kid—and of doing so as the child of larger-than-life, formidably accomplished parents: long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. From his difficulties reading social cues, to his cringe-worthy loss of sexual innocence, Bradlee describes the challenges and joys of living “a different life” with disarming candor and humor. By the end of A Different Life he will have become, if not your best friend, one of your favorite people.
From http://www.amazon.com/Different-Life-Learning-Disabled-Adventures/dp/B004JU1U1U
Socially Curious and Curiously Social: A Social Thinking Guidebook for Bright Teens & Young Adults
by Michelle Garcia Winner and Pamela Crooke
This anime-illustrated guidebook is written for teens and young adults to learn how the social mind is expected to work in order to effectively relate to others at school, at work, in the community and even at home. The book is written in the language of teens about what really goes on inside the minds of people as we share space together.
From discussing the ins and outs of what it means to be a social thinker to figuring out texting, dating, the different levels of friendship and the many and varied emotions we experience as we relate to others, the authors describe the real world of being with other people. The authors are not trying to get every reader to find a group to hang out with; instead, they are providing information to help each person find his or her place and be appreciated by others at whatever level he or she feels comfortable with.
Modified from http://www.amazon.com/Socially-Curious-Curiously-Social-Guidebook/dp/0884272028
So, What’s the Difference? A self-help guide to helping children and young adults understand their learning differences
By Donna Cutler-Landsman
This self-help workbook is designed to assist students with disabilities in understanding causes of disabilities, recognizing individual strengths and weaknesses, soliciting help from others, understanding the role of special education, learning how to be successful at school, studying for tests more effectively, getting and staying organized, coping with teasing and bullying, making and keeping friends, coping with sadness and frustration, recognizing the struggles of others, mapping out and working towards future goals.
The workbooks are available in four themes: butterflies, coral reef, racecar and jungle.
Children with Cleft Lip and Palate
A Parents’ Guide to Early Speech- Language Development and Treatment
by Mary A. Hardin-Jones, Ph.D., CCC-SLP, Kathy L. Chapman, Ph.D., CCC-SLP & Nancy J. Scherer, Ph.D., CCC-SLP
Family-friendly guidance and support for young children with clefts. Teams of SLPs explain clefts and offer strategies to improve speech and language in children up to age three.
Modified from http://woodbinehouse.com/book_reviews.asp?product_id=978-1-60613-210-4
Marriage: Married with Special-Needs Children: A Couples’ Guide to Keeping Connected
by Laura E Marshak and Fran P Prezant
This book looks at the ways in which having a child with special needs can make it more difficult for a marriage to thrive. The authors examine many of the underlying stresses and common pitfalls, and then present a wide range of strategies for handling or preventing these problems. Parents get advice about the importance of romance and intimacy and the benefits of finding time for each other even when they feel too tired or overwhelmed. In addition, the book deals with serious marital troubles and divorce considerations.
For parents looking for ways to strengthen their marriage, prevent future strife, or resolve or move on from significant relationship difficulties, this guide offers guidance and expertise for taking the next step. This book is also invaluable to mental health professionals, giving them a realistic view of what many of their clients are dealing with on a day-to-day basis.
Modified from http://www.amazon.com/Married-Special-Needs-Children-Couples-Connected/dp/1890627100
For Siblings
Living With a Brother or Sister With Special Needs: A Book for Sibs
by Donald Meyer and Patricia Vadasy
Living with a Brother or Sister with Special Needs focuses on the intensity of emotions that brothers and sisters experience when they have a sibling with special needs, and the hard questions they ask: What caused my sibling’s disability? Could my own child have a disability as well? What will happen to my sibling if my parents die? Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and not-so-good parts of having a sibling with special needs, and offers suggestions for how to make life easier for everyone in the family.
This revised and updated edition includes new sections on attention deficit hyperactivity disorder, fetal alcohol syndrome, fragile X syndrome, traumatic brain injuries, ultrasound, speech therapy, recent legislation on disabilities, and an extensive bibliography.
Modified from http://www.amazon.com/Living-Brother-Sister-Special-Needs/dp/0295975474
Views from Our Shoes: Growing Up with a Brother or Sister with Special Needs
by Donald Joseph Meyer
In Views From Our Shoes, 45 siblings share their experiences as the brother or sister of someone with a disability. The children whose essays are featured here range from four to eighteen and are the siblings of youngsters with a variety of special needs, including autism, cerebral palsy, developmental delays, ADD, hydrocephalus, visual and hearing impairments, Down and Tourette syndromes. Their personal tales introduce young siblings to others like them, perhaps for the first time, and allow them to compare experiences. A glossary of disabilities provides easy-to-understand definitions of many of the conditions mentioned.
From http://www.amazon.com/Views-Our-Shoes-Growing-Brother/dp/0933149980
For Professionals
The Chromosome 22q11.2 Deletion Syndrome
A Multidisciplinary Approach to Diagnosis and Treatment
1st Edition – August 19, 2022
The Chromosome 22q11.2 Deletion Syndrome: A Multidisciplinary Approach to Diagnosis and Treatment serves as the first comprehensive, user-friendly resource on associated features, treatment strategies, prognosis, and recurrence risk associated with 22q11.2 deletion syndrome. Leading international contributors cover all areas, with an emphasis on multidisciplinary care, as this book is written by experts in every subspecialty, including cardiology, behavioral health, education, endocrinology, gastroenterology, hematology, immunology, neurology, ophthalmology, plastic surgery, and speech pathology, among other fields, providing an unmatched resource. With full color images and beautiful photos of individuals with the 22q11.2 deletion that enhance understanding of associated conditions, no question, this textbook has already become the “go-to” resource for clinicians, researchers, trainees, and families alike.
Key Features
- Provides a complete description of 22q11.2 deletion syndrome for healthcare professionals, researchers, trainees, and families affected by this common condition
- Presents diagnostic and treatment strategies to help tackle this complex and often undiagnosed and therefore undertreated condition
- Covered in a user-friendly, practical format that emphasizes evidence-based evaluation and treatment derived from the latest clinical experience and research in the field
- Features leading international contributors in numerous sub-specialties, representing the multisystem nature of this condition
- Includes full color figures, flow charts, tables, and patient images to guide real-time decision-making
Available on all the usual retail outlets, as well as at Elsevier.com The Chromosome 22q11.2 Deletion Syndrome – 1st Edition (elsevier.com) in print and electronic format. It is also available in html and pdf format on ScienceDirect.
Velo-cardio-facial Syndrome: v. II: Treatment of Communication Disorders
by Robert J Shprintzen and Karen Golding-Kushner
With an estimated human population prevalence of 1:2000, Velo-Cardio-Facial Syndrome (VCFS) is the second-most common multiple anomaly syndrome in humans and almost all children with the syndrome have speech and language impairments that are generally recognized to be complex and difficult to treat.
Volume II includes speech and language difficulties most often associated with VCFS; the aspects of articulation and resonance, how they are best evaluated, and surgical management; general principles on how to make articulation therapy successful for children with cleft palate, VCFS, or both, many of which apply to language therapy and other behaviors, as well; and insights into prevention of the abnormal articulation patterns that tend to develop and how to guide children through stages of language development.
The DVD includes all images from the book, along with 80 video clips that present normal and abnormal conditions and illustrate anomalies in VCFS through nasopharyngoscopy and videofluoroscopy examples.
Modified from http://www.pluralpublishing.com/publication_vcfsv2.htm
Velo-Cardio-Facial Syndrome: A Model for Understanding Microdeletion Disorders
by Kieran C Murphy and Peter J Scambler
Velo-Cardio-Facial Syndrome (VCFS) is a genetic disorder caused by the deletion of part of chromosome 22. It occurs in approximately one in 4000 births and there are now more than 100 physical phenotypic features reported. VCFS affects every major system in the body and this 2005 book was the first to describe its full clinical impact. It has been authored by leading international VCFS clinicians/researchers. The focus is on clinical issues with chapters devoted to psychiatric disorders (with the sufferer showing very high levels of schizophrenia), neuroimaging, speech and language disorders, as well as cardiac, ENT, gastrointestinal, ophthalmic and urological manifestations. Molecular genetics, immunodeficiency and genetic counselling are also covered, and practical approaches to diagnosis and treatment described. As VCFS is seen as a paradigm for other microdeletion disorders, this book will not just appeal to clinicians seeing VCFS patients, but also to those interested in other genetic disorders.
The Clinician’s Guide to Treating Cleft Palate Speech
by Sally Peterson-Falzone, Judith Trost-Cardamone, Michael Karnell, Mary Hardin-Jones
The most up-to-date information on cleft palate speech therapy. This textbook features an easy-to-use format ― including many bulleted lists, tables, and illustrations ― to give you instant access to the answers you need surrounding the effects of clefts and non-cleft velopharyngeal inadequacy (VPI) on communication development in children. Updated information includes new content on interprofessional team decision-making, along with the diagnosis and management of the resulting disorders.
Modifed from: https://www.amazon.com/Clinicians-Guide-Treating-Palate-Speech/dp/0323339344/ref=sr_1_1?s=books&ie=UTF8&qid=1480445342&sr=1-1