Helping your Anxious Child
A Step by Step Guide for Parents
by Ronald Rapee, PhD
This revised and expanded edition of the best-selling Helping Your Anxious Child offers parents the most up-to-date, proven-effective techniques for helping children overcome anxiety.
Overview of The Syndrome Missing Genetic Pieces
by Sherry Baker-Gomez
The author, Sherry Baker-Gomez, is the parent of a child with VCFS. Her son, now 25, was finally diagnosed with VCFS at 18 years of age after a long medical history and searching for answers. Sherry, herself, had been so desperate for answers after many years of struggling with her son’s undiagnosed disorder that she became a nurse in an effort to understand the symptoms she saw in him and what they meant. Then she realized that many other parents needed answers and needed to know where to turn, so she began writing.
Committed to VCFS education, Sherry started gathering information on resources and, stories that offered support. Working along with other parents and professionals, Sherry has organized this collection of information into a comprehensive handbook that brings information and resources to parents, professionals, and others under one cover.
Modified from http://www.amazon.com/Missing-Genetic-Pieces-Sherry-Baker-Gomez/dp/097453580X
Educating Children with Velo-cardio-facial Syndrome
by Donna Cutler-Landsman
This book effectively blends the thoughtful research that has transpired within the past 15 years with practical and current educational strategies to better meet the needs of children with VCFS and other developmental disabilities.
The first part of the book explains the syndrome and the implications of current research in the fields of brain abnormalities, language/learning profiles and psychiatric/behavioral difficulties. These chapters are written in a reader-friendly manner for parents, professionals, and teachers. The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. It includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures, as well as behavioral problems in the school setting. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child’s everyday life.
Modified from http://www.amazon.com/Educating-Velo-Cardio-Facial-Syndromes-Communication-Disorders/dp/1597564923
Educating the Child with VCFS Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome. Second Edition
by Donna Cutler-Landsman
For the second edition, the author has added fresh and updated content. A partial list of new material includes:
- The most recent research and studies to make the text as up-to-date as possible
- Expanded and enhanced coverage of bullying and the social/emotional aspects of VCFS
- More information on common core standards and standardized testing for children with disabilities
- Homeschooling and other placement alternatives
- Executive functioning deficits and their impact in the classroom
- Dealing with problem behaviors
- Issues related to anxiety and school success
- Cognitive remediation and new treatment strategies
- New math and reading remediation techniques
- Expanded section on the very young child
With its expanded content, as well as contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial-syndrome.
Modified from http://www.amazon.com
Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome)
by Raymond Tanner
54-year-old Raymond Tanner has always felt different. As a child, he looked unusual, had trouble speaking clearly and was a slow learner. Over the years, he’s had countless operations to improve his appearance. For Tanner, being diagnosed with VCSF (at the age of 43) helped him re-evaluate his life, but it also brought a burden of guilt – both his sons were born with the syndrome. His first son died of heart problems when he was nine days old. His other son, Andrew, has ongoing health issues. Tanner now hopes to help other families through giving them a better understanding of VCFS, and encouragement that support is available and there is hope for the future.
This book is a compilation of stories from families from Australia, France, Israel, New Zealand, South Africa, the UK and the USA; and other important information. It also tells about Raymond Tanner’s life story with VCFS in himself and his two sons.
Modified from http://www.amazon.com/Footprints-Hope-VCFS-Velo-Cardio-Facial-Syndrome/dp/0958117535
Adolescence and Young Adulthood Being Different: Growing up with impairments
by Daniella Krijger
Daniella is worried about the future of her son Tijn. He has been diagnosed with 22Q11deletion syndrome, and also has ADHD, autism spectrum disorder and Dyslexia. She wanted to know how people with a syndrome, disorder or impairment led their lives, what they had been through and whether they had been able to make their dreams come true despite these obstacles. How does it feel when others see you as being ‘different’ and treat you ‘differently’?
In this inspiring book, adolescents and adults with 22Q11 deletion syndrome, ADHD and ASD tell about their dreams and ambitions, friendships, love, education, work, drugs and depressions. Young people with a disability have to work harder at doing their best. They have the additional challenge of biases and incomprehension. Increasing awareness about 22Q11 deletion syndrome will hopefully contribute to more understanding and patience for these people who might seem different but who are as ordinary as anyone else.
Modified from http://www.amazon.com/Being-Different-Growing-impairments-ebook/dp/B008EVT0TE
A Different Life
by Quinn Bradlee
Ten percent of the population is affected by a learning disability, but few of us understand what being learning disabled (LD) is really like. When he was fourteen, Bradlee was diagnosed with Velo-Cardio-Facial-Syndrome (VCFS), a wide-spread, little-understood disorder that is expressed through a wide range of physical ailments and learning disabilities. In this funny, moving, and often irreverent book, Bradlee tells his own inspirational story of growing up as an LD kid—and of doing so as the child of larger-than-life, formidably accomplished parents: long-time Washington Post executive editor Ben Bradlee and bestselling author Sally Quinn. From his difficulties reading social cues, to his cringe-worthy loss of sexual innocence, Bradlee describes the challenges and joys of living “a different life” with disarming candor and humor. By the end of A Different Life he will have become, if not your best friend, one of your favorite people.
Socially Curious and Curiously Social: A Social Thinking Guidebook for Bright Teens & Young Adults
by Michelle Garcia Winner and Pamela Crooke
This anime-illustrated guidebook is written for teens and young adults to learn how the social mind is expected to work in order to effectively relate to others at school, at work, in the community and even at home. The book is written in the language of teens about what really goes on inside the minds of people as we share space together.
From discussing the ins and outs of what it means to be a social thinker to figuring out texting, dating, the different levels of friendship and the many and varied emotions we experience as we relate to others, the authors describe the real world of being with other people. The authors are not trying to get every reader to find a group to hang out with; instead, they are providing information to help each person find his or her place and be appreciated by others at whatever level he or she feels comfortable with.
Modified from http://www.amazon.com/Socially-Curious-Curiously-Social-Guidebook/dp/0884272028
So, What’s the Difference? A self-help guide to helping children and young adults understand their learning differences
By Donna Cutler-Landsman
This self-help workbook is designed to assist students with disabilities in understanding causes of disabilities, recognizing individual strengths and weaknesses, soliciting help from others, understanding the role of special education, learning how to be successful at school, studying for tests more eﬀectively, getting and staying organized, coping with teasing and bullying, making and keeping friends, coping with sadness and frustration, recognizing the struggles of others, mapping out and working towards future goals.
The workbooks are available in four themes: butterflies, coral reef, racecar and jungle.
Children with Cleft Lip and Palate
A Parents’ Guide to Early Speech- Language Development and Treatment
by Mary A. Hardin-Jones, Ph.D., CCC-SLP, Kathy L. Chapman, Ph.D., CCC-SLP & Nancy J. Scherer, Ph.D., CCC-SLP
Family-friendly guidance and support for young children with clefts. Teams of SLPs explain clefts and offer strategies to improve speech and language in children up to age three.
Modified from http://woodbinehouse.com/book_reviews.asp?product_id=978-1-60613-210-4
Marriage: Married with Special-Needs Children: A Couples’ Guide to Keeping Connected
by Laura E Marshak and Fran P Prezant
This book looks at the ways in which having a child with special needs can make it more difficult for a marriage to thrive. The authors examine many of the underlying stresses and common pitfalls, and then present a wide range of strategies for handling or preventing these problems. Parents get advice about the importance of romance and intimacy and the benefits of finding time for each other even when they feel too tired or overwhelmed. In addition, the book deals with serious marital troubles and divorce considerations.
For parents looking for ways to strengthen their marriage, prevent future strife, or resolve or move on from significant relationship difficulties, this guide offers guidance and expertise for taking the next step. This book is also invaluable to mental health professionals, giving them a realistic view of what many of their clients are dealing with on a day-to-day basis.
Modified from http://www.amazon.com/Married-Special-Needs-Children-Couples-Connected/dp/1890627100