Braden
Braden was diagnosed with 22q deletion shortly after his birth on April 8, 2013. He was born with multiple heart defects that required emergency surgery.
Noah
Noah was born in Texas. Although he was tiny at birth, there were no initial concerns. He was a very snuggly baby and enjoyed watching his older brother.
McKenna Grace
McKenna is the daughter of Robin, you may remember reading about Robin--our 22q nurse
Cara & Oliver
Cara, a 28-year-old, Texas native, who lives with 22q11.2 deletion syndrome and manages her daily life with hard work, dedication, and a lot of faith
William & Jordon
William is our April 22q Calendar Spotlight. Shortly after his birth, his parents noticed something wasn’t right.
Robin & McKenna
Robin has been a feature story for us in the past, this time we want to share how she is working the front lines helping to educate others about the COVID19 vaccine.
Amirah
I had a normal pregnancy with Amirah so I had all the usual hopes and dreams prior to delivery that my child would be happy and healthy.
Cassie Lira
Cassie Lira was born September 10, 2008 as a full term healthy 6 pound 14 ounce little girl. As she got older she was not gaining weight or growing in height.
Easton
Easton was born in Raleigh, NC on April 4, 2014. He was a big boy weighing in at 9lbs and 7ozs. When he was born and we only knew about his cleft lip.
Jordan James
Hi everyone! I am Jordan James (JJ) and I am 4 years old (soon to be 5)! I decided to make my appearance 6 and a half weeks early and spent my first 6 weeks in the Neonatal Intensive Care Unit.