Noah
Noah was born in Texas. Although he was tiny at birth, there were no initial concerns. He was a very snuggly baby and enjoyed watching his older brother.
Jeffrey “Ryan” Lanford
Ryan Lanford had big plans – always. Diagnosed with 22q in 1994, he wanted to be a running back for the Carolina Panthers.
McKenna Grace
McKenna is the daughter of Robin, you may remember reading about Robin--our 22q nurse
Brianna
Meet Brianna, a 32-year-old with 22q Deletion. Brianna’s story starts out like so many others, when she was born, there was no diagnosis.
Cara & Oliver
Cara, a 28-year-old, Texas native, who lives with 22q11.2 deletion syndrome and manages her daily life with hard work, dedication, and a lot of faith
William & Jordon
William is our April 22q Calendar Spotlight. Shortly after his birth, his parents noticed something wasn’t right.
Robin & McKenna
Robin has been a feature story for us in the past, this time we want to share how she is working the front lines helping to educate others about the COVID19 vaccine.
Amirah
I had a normal pregnancy with Amirah so I had all the usual hopes and dreams prior to delivery that my child would be happy and healthy.
Cassie Lira
Cassie Lira was born September 10, 2008 as a full term healthy 6 pound 14 ounce little girl. As she got older she was not gaining weight or growing in height.
Amy Rogers
Amy was born a blue baby. She had difficulty feeding, frequent illnesses and cried with discomfort almost constantly. At 13 months, Amy had heart surgery to repair a large VSD and release a vascular ring.