Support organizations for families affected by 22q differences
The International 22q11.2 Foundation is providing following list of organizations for families who wish to connect with others who are also affected by 22q differences. If you have any medical concerns, please seek individualized advice from your healthcare provider.
If you represent a non-profit organization that benefits families with 22q11.2 differences, please reach out to us at info@22q.org. We will be more than happy to update and add your organization.
North America
USA
Canada
South America
Europe
- 22q11 Europe
- AIdel22 (Italy)
- La Asociación Síndrome 22q11 (Madrid, Spain)
- L’Associació Catalana de la Síndrome 22q11
- Asociation 22q de Andalucía
- Síndrome 22q11.2 (DiGeorge/ Velocardiofacial) Em Português
- 22q Belgium (Belgium – Dutch)
- L’association Génération 22 (France)
- Stichting Steun 22q11 (The Netherlands)
- KiDS-22q11 eV (Germany)
- 22q11 Polska (Poland)
- 22q11 Danmark (Denmark)
- Max Appeal (UK)
- 22q Northern Ireland
- 22q11 Ireland
Africa
Asia
Australia and New Zealand
Support organizations for conditions related to 22q differences
The International 22q11.2 Foundation is providing following list of organizations for families who wish to connect with others who are also affected by conditions related to 22q differences. If you have any medical concerns, please seek individualized advice from your healthcare provider.
If you represent a non-profit organization that benefits families with 22q11.2 deletion and/or duplication, please reach out to us at info@22q.org. We will be more than happy to update and add your organization.
- American Heart Association
- American Cleft Palate Craniofacial Association
- Council for Exceptional Children
- EUROIDS – Rare Diseases Europe
- Immune Deficiency Foundation
- National Organization for Rare Disorders (NORD)
- Wrightslaw
Disclaimer: The International 22q11.2 Foundation is not responsible for the content of external websites, and the inclusion of these organizations on our website does not constitute an endorsement from our foundation.
Organizations for professionals working with 22q and related conditions
The International 22q11.2 Foundation is providing following list of organizations for professionals who take care of individuals with 22q differences and/or who conduct related research.
Disclaimer: The International 22q11.2 Foundation is not responsible for the content of external websites, and the inclusion of these organizations on our website does not constitute an endorsement from our foundation.