Dylan
Dylan is a 2 1/2-year-old curious, silly, and loving boy. He loves the outdoors, cars, superheroes and keeping up with his big brother Liam.
Teresa Elena
Teresa Elena Mataya was born on June 22, 2017, in Nashville, Tennessee, at Monroe Carrell Jr. Children’s Hospital (Vanderbilt).
Karsen
Karsen Grey is now 5 years old and was born in Columbus, Ohio. We first noticed some developmental delays with him around a year old and at that time, we connected with our county’s program for such delays and began our journey with specialists.
Viola
Viola is 4 years old and was born at Loma Linda Children's Hospital in St, Loma Linda, CA. Viola was diagnosed with 22q Deletion at birth and in her 4 short years, she has been through many surgeries.
Chelsea
My name is Chelsea Gaughran, I was born in Richmond, Virginia, but lived in New Jersey until I was 2 years old and then I lived near Washington DC until I was 6 years old.
Noah
Noah is 7 years old and was born in Arkansas. He has always been such a sweet, kind and funny little boy. He was first diagnosed with 22q Deletion Syndrome
Prenatal Medical Management of 22q11.2 Deletion Syndrome Tips for Families
Author: Julie Moldenhauer, MD and Erica Schindewolf, MS, LCGC [...]
Lucas
Lucas Moore’s health care team at University of Iowa Stead Family Children’s Hospital provided his parents with the missing piece of a puzzle when they diagnosed him with a rare syndrome called 22q, two days after birth.
Optimizing Outcomes for Adults with 22q11.2 Deletion Syndrome
Author Anne S. Bassett, MD, FRCPC Brief Description Prof. [...]
22q – an Overview (AKA – A Tiny Piece Leading to a Big Picture)
Author Donna M. McDonald-McGinn MS, LCGC Brief Description Prof. [...]