• Researchers have found a prevalence for 22q nearly as common as Down Syndrome

    New scientific article describes the prevalence of 22q11.2 syndromes to be near 1/1000 births and not 1/4000 as prevously believed. A prevalence nearly as common as Down Syndrome. Read More
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Welcome to the 22q Foundation

Perhaps you've found your way to our website because you or a loved one was recently diagnosed with the 22q11.2 deletion. Maybe you're a physician, therapist, or educator looking for information about a new patient or student. However you came to find us, you've come to the right place. Our growing Foundation is committed to improving the lives of people with the 22q11.2 deletion syndrome and their families; with your help, we can realize our goals of detection, care, and cure.

To learn more about 22q, please click here.

22Q Stories

Resources For...

Resources For ParentsPARENTS
Content specifically for families.

Resources For EducatorsEDUCATORS
Content for Educators working with kids with 22q.


Content for Medical Providers working with 22q patients

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