Posted March 25, 2026

My name is Tenzin Dhoundup, and I was born in Himachal Pradesh, India. From the very beginning, my life was a little different. When I was young, my mother was told by a cardiologist that I had a ventricular septal defect and would need ongoing care. My childhood wasn’t like most others, but those early challenges helped shape my strength and resilience.

For many years, I didn’t fully understand everything I was going through. That changed when I was 17. After experiencing multiple seizures, I was admitted to the hospital for further evaluation. During that time, doctors recommended genetic testing, and I was referred for more specialized care. That’s when I was diagnosed with 22q11.2 Deletion Syndrome. It was a lot to take in, but it also gave me answers I had been searching for.

That experience in the hospital changed my life in another important way—it’s where I discovered my passion for nursing. Being surrounded by healthcare professionals who cared for me and supported me inspired me to want to do the same for others.

School was not always easy for me. I faced challenges, especially with speech and learning, and I worked with a speech pathologist who made a big impact on my life. She was kind, supportive, and truly cared about me. I also had an Individualized Education Program starting in middle school, and my mother was a strong advocate for me every step of the way. Because of that support, I was able to keep moving forward.

Growing up, I found peace in simple things. I enjoyed running and spending time near rivers. Those moments helped me feel calm and grounded.

Today, I am proud of how far I’ve come. I completed my training as a Patient Care Technician, and I am working toward going to nursing school. It hasn’t been an easy journey, but it has been meaningful, and every step has brought me closer to my goals.

If I could share anything with others growing up with 22q, it would be this: anything is possible if you have aspirations and believe in yourself. I was a very shy kid, but I’ve learned that you can grow, find your voice, and achieve more than you ever thought possible. You are not alone—there are people who care and a community that supports you.

Looking ahead, my goal is to become a nurse and use my experiences to help others. I want to give back, support patients, and make a difference in their lives—just like others have done for me.

My journey hasn’t always been easy, but it has made me who I am today. And I’m proud to keep moving forward.