Aine & Ciaran
Aine Keogh and her son, Ciaran, were both born with 22q11.2, which she quotes as the “most common rare syndrome you’ve never heard of”.
Chase
Chase is a 9-year-old little boy. He was diagnosed with a CHD when he was a few days old.
Evan
Evan was diagnosed with 22q when he was three days old.
Cash
Cash was born on February 10, 2019, in Bar Harbor, Maine.
Lee
As a mom of a child with 22q, Cassie’s goals for her son, Lee, are similar to those of any mother.
Amelia
Amelia was diagnosed with 22q when her mother, Holly, was 22 weeks pregnant. Amelia’s biological father has the syndrome, so Holly wanted to be tested so she could prepare.
Addison
Childhood with Addison was different, challenging, and exciting. She is my first and only child.
Katie
Growing up, Katie achieved most of her developmental milestones on time. She walked a little later at 14 months but had already had two open heart surgeries by that time. Katie’s speech wasn’t developing as it should, so she had weekly speech therapy until she was four years old and her mother learned sign language to communicate with her.
Maddy
Maddy was born in Cleveland, Ohio and is 25 years old. She was about three months old when her family received the news of her 22q diagnosis. At seven weeks of age, Maddy had open-heart surgery
Maximus
In the eyes of his parents, “Our son Maximus is an absolute miracle, that took many years of hope and faith. Our journey begins with his mother Milagros, which means miracle in Spanish, always determined to make her dreams a reality.