Bailey was born in December 2004 and came home from the hospital as a healthy little girl. At 2 weeks old her doctor heard a heart murmur during a routine office visit and we were sent to a pediatric cardiologist to make sure that nothing serious was going on.
Alannah was born on 7th May 2006 after a normal pregnancy and very fast delivery. All appeared fine and we were thrilled with our little girl.
Jeff was born on November 23, 1992 and we immediately knew he had a cleft of the soft palate and low calcium levels. We were told that nothing else was wrong with our son.
I guess I didn’t want to leave the warm cocoon of my mother’s belly because of all the problems in the world I would face with my health. That was evident when they found that when I exited finally the cord was wrapped around my neck.
Leah Ryan is now 17, and amongst other things she has experienced learning difficulties and problems with fine motor skills since she was a baby – but was only diagnosed with a mild form of the 22q11.2 deletion syndrome when she had just turned 12.
