The International 22q11.2 Foundation’s Board of Directors includes parents, health-care professionals with expertise in chromosome 22q11.2 differences, and members of the lay public. All members are volunteers, many of whom have been contributing to the 22q community through the Foundation since its inception in 2003. The Board endeavors to fulfill the vision and mission of the Foundation, as well as to provide oversight of fiscal operations.

Board of Directors

Marc Weinberg, Esq*
Chairperson, Parent
Holland, PA

Missy DiSibio*
Vice Chairperson, Parent
Cherry Hill, NJ

Melissa Maisenbacher, MS, CGC
Recording Secretary
Genetic Counselor
Virginia Beach, VA

Suzanne DiCamillo
Treasurer
Moorestown, NJ

Anne Bassett, MD
Medical Director, Psychiatrist
University of Toronto
Toronto, Canada

Manish Arora BDS, MPH, PHD
Parent
Edith J Baerwald Professor and Vice Chairman
Division Chief,  Environmental Health
Department of Environmental Medicine and Public Health
Icahn School of Medicine at Mount Sinai
New York, NY

Debbie DeLoach
Parent
Greensboro, NC

Donna Cutler-Landsman, M.S.
Parent, Cutler-Landsman Consulting
Madison, WI

Nicole Mark 
Parent
Boca Raton, Fl

Donna M. McDonald-McGinn, MS, LCGC*
Clinical Professor of Pediatrics
Perelman School of Medicine of the University of Pennsylvania
Director, 22q and You Center
Chief, Section of Genetic Counseling
Associate Director, Clinical Genetics Center
Division of Human Genetics
Children’s Hospital of Philadelphia
Philadelphia, PA

Christine Moriconi, Psy.D., RNC, LMFT
Parent
Huntington Valley, PA

Edward M Moss, PhD
Pediatric Neuropsychologist
Bryn Mawr, PA

Mindy Taylor 
Parent
Denver, CO

Paula Uccello
Parent
Colchester, CT

Elizabeth M. Vinhal, Esq
Parent
Basking Ridge, NJ

* Founding Board Members

Medical Advisory Board

Click HERE to meet our Medical Advisory Board.

Affiliate Members

Anne Lawlor

22q11 Ireland 

Dublin, Ireland

Giulietta Angelelli Cafiero

Aidel 22

Rome, Italy

Julie Wootton

   

Max Appeal

Stourbridge, United Kingdom

Maria Kamper

22q Foundation Australia & New Zealand

Ancillary Board

Communicate and identify needs in our community and develop a plan to implement. Provide necessary support to the primary activities and operation of the foundation.

Michael Weinberg,  Co-Chair
Email: michaelweinberg2012@gmail.com

Rebecca Osberg, Co-Chair
Email: raredisorders@yahoo.com

Aine Lawlor
Quinn Bradlee
Tessa Kohler
Kayla Disibio
Stephen Moriconi

22q Ambassadors

Rebecca  Osberg
Email: raredisorders@yahoo.com

Michael Weinberg
Email: michaelweinberg2012@gmail.com

Staff

Carol Cavana
Administrative Assistant
Proud Parent of a Son with 22q11.2 DS
Founding Board Member, Past Secretary, Past Chair of the International 22q11.2 Foundation
carolcavana22q@aol.com

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At the International 22q11.2 Foundation we help families that need important resources and information to meet the needs of loved ones with 22q.

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