Author: Julie Moldenhauer, MD and Erica Schindewolf, MS, LCGC [...]
Lucas Moore’s health care team at University of Iowa Stead Family Children’s Hospital provided his parents with the missing piece of a puzzle when they diagnosed him with a rare syndrome called 22q, two days after birth.
Author Donna M. McDonald-McGinn MS, LCGC Brief Description Prof. [...]
Dayna Is a young lady who was diagnosed 22q deletion as a baby. Her first open-heart surgery was soon after being born and she has now had 6 open-heart surgeries and a pacemaker.
Elisabeth Posted November 1, 2021 Hello, my name is [...]
A few years ago I had written a paper on my life with 22q. Since I wrote it, life has been challenging but manageable. The following is an update on what’s been happening.
George is a sweet little 2-year-old who tries hard to keep up with his 2 older brothers. This is how his mom tells his story:
Posted September 7, 2021 Elisabeth was the third child [...]
Hello, My name is Cynthia! I’m 24 years old [...]