Your privacy is important to The International 22q11.2 Foundation. This statement describes The International 22q11.2 Foundation’s privacy practices for its own Web site.
You can visit www.22q.org Web site without telling us who you are and without revealing any information about yourself. However, to access certain portions of the Web site, you may have to submit information such as user-id and password, or to access some services we provide, you may have to give us personal information such as your name and address and e-mail.
To access our transaction programs, we may ask you for your address and/or credit card information. When registering at The International 22q11.2 Foundation services, we may also ask you to choose a security question to answer (such as your mother’s maiden name or your pet’s name). This required information is necessary for us to process transactions, issue a new password if you forget or lose your password, protect you against credit card fraud, and to contact you should the need arise in administering your account.
Information security and quality
We intend to protect the quality and integrity of your personally identifiable information. We have implemented appropriate physical, technical and organizational measures, such as using industry accepted encryption for transmission of credit card information, to help keep your information secure, accurate, current, and complete.
Web site traffic information
When you arrive at or leave the The International 22q11.2 Foundation Web site, we automatically receive the Web address of the site that you came from or are going to. We also collect information on which pages of our Web site you visit while you are on our hosted site, the type of browser you use and the times you access our hosted sites. We use this information only to try to better understand visitor preferences.
Disclosure to third parties
We will only share personally identifiable information with a third party if and when the individual submitting this information has permitted us to do so, or if we are required by law to do so.
The International 22q11.2 Foundation adheres to a strict anti-spam policy, making it easy for subscribers to unsubscribe. The International 22q11.2 Syndrome Foundation, Inc. also provides Web site visitors who have created personal Web pages email marketing tools. These tools provide convenient ways to communicate with friends and family on a personal level; they are not designed for sending out bulk emails.
Personalized Web pages
The International 22q11.2 Foundation enables its donors to allow their constituents to create personalized Web pages. The International 22q11.2 Foundation also enables donors to allow constituents to create Web content (including email) that bring visitors to these personalized Web pages. Such personal Web pages as well as the donors associated with these pages, are readily identifiable. By clicking on a link and going to a personal Web page you are agreeing to let The International 22q11.2 Foundation collect information about your session visits. We use this information for aggregate statistical analysis only. If a visitor provides personal information on these Web pages, then it is only available to The International 22q11.2 Foundation.
Children's Online Privacy Protection
While few, if any, of The International 22q11.2 Foundation generated Web sites are directed towards children, we are committed to comply with applicable laws and requirements, such as the United States' Children's Online Privacy Protection Act (COPPA).
Links to Other Web Sites
The International 22q11.2 Foundation Web Site can contain links to other Web sites. The International 22q11.2 Foundation is not responsible for the privacy practices or the content of such Web sites.
Enrollment in a International 22q11.2 Foundation program is accepted on a first-come, first-serve basis, as long as published eligibility requirements are met. If you wish to withdraw from a program, you may do so at any time. If not stated, you are eligible for a refund up to 10 business days before the program. After that time no refunds are available.
We reserve the right the cancel International 22q11.2 Foundation programs if minimum enrollment is not met, in which case, all payments will be refunded.
Notification of Changes
This privacy statement was last updated on June 15, 2012. Please visit this page from time to time and check for any updates.
“Donor Bill of Rights”
The International 22q11.2 Foundation believes in the rights of donors, subscribes to the Donor Bill of Rights. This statement of rights was developed by the following organizations: American Association of Fund Raising Counsel (AAFRC), Association for Healthcare Philanthropy (AHP), Council for Advancement and Support of Education (CASE), and the National Society of Fund Raising Executives (NSFRE). The full text of the Donor Bill of Rights is as follows (see http://www.afpnet.org/ethics/ethics_and_donors):
Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To assure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the not-for-profit organizations and causes they are asked to support, we declare that all donors have these rights:
Questions regarding this statement should be directed to email@example.com or
The International 22q11.2 Foundation
P.O. Box 424
Matawan, New Jersey 07747